CHICAGO — Patients with hypertrophic cardiomyopathy who participate in thrill-seeking activities such as roller coasters and jet skiing after a diagnosis had mild symptoms, although significant events including implantable cardioverter defibrillator shock and syncope were rare, according to data presented at the American Heart Association Scientific Sessions.
“Lifestyle education is an integral part of HCM management, and one question that frequently came up from patients in our institution was whether it was safe to continue thrill-seeking activities they previously enjoyed,” Nikolaos Papoutsidakis, MD, PhD, instructor of cardiology at Yale University School of Medicine, told Cardiology Today. “We realized there are a paucity of data on this topic, so we set up this study to add a discussion point between doctors and their patients.”
Researchers analyzed data from 633 patients (mean age, 51 years; 351 women) with hypertrophic cardiomyopathy.
Patients were invited to the study through an anonymous online survey which collected information on thrill-seeking activity participation and associated symptoms. Thrill-seeking activities were defined as jet skiing, roller coaster riding, bungee jumping, rafting, paragliding, rappelling, motor racing, kayaking and canoeing, snowboarding, skydiving and base jumping.
Of the patients in the study, 556 reported participating in thrill-seeking activities, and 331 patients continued participation after diagnosis.
Patients were at high risk for arrhythmias, with 45% after implantation of an ICD, 24.4% with daily symptoms, 31.4% with a history of ventricular tachycardia and 13.8% after an ICD shock.
The number of thrill-seeking activities undertaken was 7,994, and 33.6% of patients had minor events such as dizziness, nausea, palpitations or chest pain.
Significant events during the activity or with 60 minutes after participation were reported by 0.02% of patients. One ICD shock was also reported during this time.
“For lifestyle changes in HCM, we support a shared decision-making approach,” Papoutsidakis said in an interview. “Physicians can use these data to inform their patients about possible risks — in this case, probably very small risks. Patients can then make a more educated decision about the risks and benefits of participating in the activities they enjoy.” – by Darlene Dobkowski and Erik Swain
Papoutsidakis N, et al. Poster Su2110. Presented at: American Heart Association Scientific Sessions; Nov. 10-12, 2018; Chicago.
Disclosures: The authors report no relevant financial disclosures.