CCFA Partners awarded funds to expand health data network

The Patient-Centered Outcomes Research Institute has approved an award to the Crohn’s and Colitis Foundation of America’s Partners Research Initiative to develop and expand a health data network as part of the National Patient-Centered National Clinical Research Network, according to a news release.

“Our IBD-focused, patient-powered research network will be a tremendous opportunity to build and strengthen alliances between the patient and scientific communities,” Michael Kappelman, MD, MPH, associate professor of pediatrics at the University of North Carolina School of Medicine and scientific director of the project, said in the release.

The research network is intended to allow for easier and more efficient access to patient-centered comparative effectiveness research from 29 individual networks to better support various study designs and allow for easier launch of new studies, the release said.

The CCFA Partners portion of the project is expected to run for about 18 months with a proposed budget of $1 million.

“The project will utilize state-of-the-art bioinformatics to enable patients to be more directly involved in all aspects of research,” Kappelman said. “This will include the development of tools whereby patients can integrate and visualize their own data to gain insight into factors which may affect their own health.”

R. Balfour Sartor, MD, chief medical adviser for CCFA, will serve as principle investigator for the project.