May 24, 2015
Philanthropists Leon and Irina Shaulov contributed $1 million to the Foundation for Prader-Willi Research to support research programs and clinical initiatives in what is the group’s largest donation to date, according to a foundation press release.
The announcement of the gift, described as a “huge moment for the organization,” comes during national Prader-Willi syndrome (PWS) Awareness month. The genetic disorder touches approximately 1 in 15,000 people and affects nearly every system in the body, though the distinguishing symptom is extreme hunger. There are currently no effective treatments to regulate appetite.