Pediatric Endocrinology

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Health-related quality of life lower in parents of children with metabolic disease

July 27, 2016

Parents of children with congenital disorders of metabolism tend to have a lower health-related quality of life vs. parents of children without metabolic disease, with results mediated by parental age, monthly income and level of education, according to recent survey data.

“[Inborn errors of metabolism] is a chronic disorder affecting the child as well as the entire family,” Deepa Shaji Thomas, BSN, MSN, RN, lecturer at the College of Nursing at Sultan Qaboos University in Oman, and colleagues wrote. “Most [inborn errors of metabolism] require [an] individually tailored diet, frequent blood checks and visits to pediatric centers. Altogether, these make the treatment intricate and require a lot of commitment from the part of parents and other family members ... due to the chronic condition of the child, [health-related quality of life] of the parents appears to be reduced.”

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In the Journals Plus

Health-related quality of life lower in parents of children with metabolic disease

July 27, 2016
Parents of children with congenital disorders of metabolism tend to have a lower health-related quality of life vs. parents of children without…

Perspective

Social media/mobile intervention yields short-term weight loss in young adults

July 22, 2016
Young adults with overweight and obesity randomly assigned to a technology-based weight-loss intervention saw short-term reductions in body weight…

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July 21, 2016
Sernova Corp. and the Juvenile Diabetes Research Foundation have announced a joint collaboration to advance human clinical trials of technologies for…

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Ethnicity affects TSH screening in UK newborns

July 20, 2016
Blood spot data from more than 800,000 newborns in the United Kingdom suggest mean thyroid-stimulating hormone levels in this population vary by…

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